Monday, December 31, 2012

2013

Aiden has progressed by leaps and bounds!

Someone told me recently that he could barely tell that Aiden struggles.  A year ago Aiden probably would have barked at you instead of saying, "hi".  He would have given the "blank stare" instead of attempting to respond to a question.  He had very few words, and preferred to play chase over using a toy appropriately.  
TODAY, Aiden looks you in the eye.  He says "hello," and "I'm Aiden".  He has many words, and he can put many of them in appropriate sentences!!!  His answer to "did you have fun at school today?" is now "fun!"  instead of a glazed over look.  He interacts with his brother more than he ever has.  They play together, and Austin isn't the only one talking!  

As I continue to read on the theories of autism, my heart remains conflicted.    None of the theories can explain all of the cases of autism.  1 in 88 children is now born with an autism spectrum disorder.  That is an alarming number.  What is going on?  I still believe for us, it was a genetic predisposition with some environmental trigger.  If the yeast theory holds true, then Austin and Ashton should have some autistic tendencies--please no!  Same is true with vaccinations.  I will continue to vaccinate my children.  Do I question my decision some times?  Yes.  But let's be honest here.  If I truly believed that they had something to do with it in any way, I would NOT let my children have a single shot.  No mother wants to cause this.  I wish Aiden was potty trained, I wish he didn't walk like a dog and lay flat on the floor in public, I wish I could have a conversation with my son that mimics a neural-typical child of 5.  I don't know what to expect in the future.  But, I DO know we are blessed that Aiden is indeed mildly affected by autism.  That doesn't mean that I'm going to ignore it.  I want to learn all I can and do all I can for Aiden.  I want all my children to be successful--no matter what their challenges may be.  I pray we are one of the families who get to say, "my child overcame autism".  Could 2013 be a year of more miracles? 

Thursday, December 27, 2012

Christmas

We were unable to buy many gifts again this year, but the kids were SPOILED.  I'm sincerely grateful to our friends and family who helped play "Santa"!  I look forward to the day we can "pay it forward"!

Our Christmas letter 2012:
 
2012:   It was a good one!  Full of miracles and hope for a new start in 2013!
Abe—Extended his contract with the Army National Guard for 1 more year to help get us through his final year of school!  This is his final semester before student teaching in the Spring!    He will graduate with a Masters degree in Business and Marketing Education in May 2013. 
Marian—Appreciates and loves being home most of the time with her children.  She continues to work  a day or 2 each month at the hospital to maintain her credentials as a dietitian, and to help support the family.  She has been with Beloit Hospital for 7 years.   Goals for 2013 include certifying in personal training, and beating her personal best 5K time!  Her greatest accomplishments this year?  Having another baby, and doing a 5K obstacle course 3 months post-partum!
Aiden—Will turn 5 in January!  We are so proud of Aiden’s progress despite having so much to overcome!  Even his teachers are excited about his emerging voice J  He has turned out to be a terrific listener, and a very good-natured child.  We are trying to wait patiently for intensive therapy to start in April 2013.  In the meantime, Aiden is doing well in the Early Childhood program.  This is his final year before he starts Kindergarten next Fall!  Where does the time go?
Austin—Turned 3 in November.  He is a little man with a BIG personality!  That about sums it up for him; he definitely keeps his mother on her toes!  Austin is an incredible blessing to his big brother.  Despite the fighting, Austin pushes Aiden out of his comfort zone, and into the world of “play”!  They seem lost without each other.  I’m so grateful for his help J
Ashton—What a joy it is to have a baby in the house again!  Baby Ashton settled right in like he was always part of our family.  The boys love him, and are terrific with him.  There is nothing better than baby coos and giggles!  Ashton will be 7 months old by the time you read this!
 
Wishing you many blessings, and a terrific New Year!!!
 
The McCormick Family    
 
 




Monday, December 17, 2012

Loss

Many souls were taken to God this week...
 
As I read about the young children and faithful teachers whose lives were taken in such a horrific way, my heart breaks.  All that is left is prayer.  I've been pondering my faith and the scriptures a lot this week.  Moments of peace have come.  I still know that God lives, and I find comfort that those who have passed, have gone straight to His loving arms.  Life is short.  I've been complaining about the "trying 3's," how hard it is to potty train 2 children at once, and how worried I am that Ashton will be autistic.  All that seems unimportant now.  I have my 3 kids at home with me.  I can kiss and hug them whenever I want.  My pain is nothing compared to those who are grieving now. 
 
 
Someone told me the shooter was autistic; labeled with the diagnosis of Asberger's.  What does this mean for the autistic community?  Instead of acceptance, will there be fear?  The fact that Aiden processes information differently can be a scary thing.  I don't always understand how Aiden sees the world.  Do I think autism had a role in what happened?  Maybe.  Do I trust my son?  Absolutely.  Is there some fear there?  Yes, but only that he will be bullied and feel helpless, alone, and afraid. 

http://www.psychologytoday.com/blog/my-life-aspergers/201212/asperger-s-autism-and-mass-murder

Saturday, December 1, 2012

IEP year 2

Aiden's Individual Education Plan (IEP):

Goal 1--Aiden will demonstrate an increase in expressive/receptive language skills so that he may effectively communicate basic want and needs in 4 out of 5 opportunities.  

Goal 2--Aiden will increase his social skills by responding to greetings, responding to his name being called, directing his attention, participating in teacher led activities, and interacting with peers in 3 out of 4 opportunities.

Goal 3--Aiden will increase his self-help skills by washing his hands, walking near teachers, and participating in a bathroom routine in at least 3 out of 4 opportunities.

Thank goodness for Early Childhood, because Aiden is making progress in all of these areas!  Aiden is able to make his needs known most of the time, even if it isn't a complete sentence, he can communicate what he wants.  It is rare that I don't know what Aiden needs.  Aiden says "hello" and "goodbye" appropriately with prompting, and sometimes even without it.  He is now able to sit for classroom activities and participate in "floor time".  Aiden will go to the bathroom when asked to, sit on the potty and wash his hands, but he has yet to communicate when he has to go.  When I'm able, I would like to try underwear for a week.  I did it with Austin, and it is working.  It is just very challenging with 2 to keep track of.  I'm already cleaning up a lot of pee and poo (and doing a ton more laundry)!  I'm being pulled in a lot of directions, still wondering if I'm doing all I can do, and trying to keep my head on straight.  Some days are easier in that regard than others.  Life is going to change drastically in April.  It is a constant game of finding balance in the world of autism, while raising 3 children under 5.  If God brings you to it, he will get you through it!

Wednesday, November 14, 2012

Resources


Autism Resource List

ABA Therapy:

Mercy Options - Behavioral Health Clinic - Janesville

901 Mineral Point Ave

Phone: (608) 756-5555 or (800) 341-1450

WEAP-Madison Clinic
1210 Fourier Drive
Madison, WI 53717
(608) 662-WEAP (9327)

Integrated Development Services, Inc.

6506 Schroeder Road

Madison, WI 53711

(608) 441-0123 (800) 218-3781

 

Childhood Autism Treatment Team 262-370-7744 Dr. Colleen Ryan

 

BOOKS:

“The Boy Who Loved Windows” –mother’s experience

“Let Me Hear Your Voice.  A Family’s Triumph Over Autism” Catherine Maurice-mother’s experience

“Louder Than Words” – Jenny McCarthy – mother’s experience

“Am I Still Autistic?”  John Hall – a multimillionaire’s experience growing up with autism

 

GRANTS (financial help with seminars, workshops, IPADS, etc.):




RESPITE CARE:  

Gio’s Garden (Madison) http://giosgarden.org/?page_id=708

 

Janesville/Beloit area-

Whitney Walraven Executive Director

205 N Main St STE 107

Janesville, WI 53545


OFFICE: 608-758-0956

MOBILE: 815-742-7726

A night of FREE childcare for all of your children, 3 hours, 1 night a month!

 

SEMINARS/CONFERENCES:

Jessica Quam
Case Manager/Autism Specialist

Developmental Disability Counseling
2020 E. Milwaukee Street
Suite 9
Janesville, WI 53545
P: (608) 752-4993
jquam@ccddc.com

http://www.catholiccharitiesofmadison.org/ProgramsServices/DevelopmentalDisabilities/AutismSpecialists/AutismSpecialistJessicaQuam.aspx

 

SUPPORT GROUPS:

Café Connections- Anna Fuller from Birth-3

 

 

Monday, November 5, 2012

Locked In?

So, Aiden figured out how to unlock the deadbolt and the lock on the front door a long time ago...
 
 
I kept telling Abe he needed to put a higher lock on the front door, because Aiden was opening the door to strangers.  One time I walked into the front room to find a friend in my house.  Thank goodness it was a friendly face, or I would have freaked out.  Well, Abe finally got around to it this weekend.  Epic. Fail.  Aiden moved the play structure to the door and opened the extra lock anyway!  Sigh.  Shortly after I discovered he could do this, I jumped in the shower while the boys were watching Scooby Do and the baby was napping.  The doorbell rang!  I yelled from the shower, "don't open the door!"  Thank goodness Aiden was captivated by the latest ghost on the cartoon and thought nothing of opening the door--this time.  He could easily leave at anytime he wants too.  Sometimes he does this in the morning when I'm not quite ready to walk out the door yet.  Aiden will be half-way down the street!  A family I know has alarms that sound when the windows or doors open.  I may have to consider that!
 
On a postive note, Aiden's parent/teacher conference couldn't have gone better.  She began with, "I didn't think Aiden would be ready for Kindergarden when he first started Early Childhood," but "he has made such great progress!"  Aiden is one of the strongest students from an academic stand-point, he is finally interacting with his fellow students, and he has a ton of words that are finally forming sentences!  He was even playing telephone with his speech therapist while we talked!  I couldn't be more excited for this school year.  What a blessing it is to watch Aiden overcome so much.  I silently cry a lot.  Every complete sentence or appropriate response/interaction brings me to tears.  Aiden gave me a big hug yesterday, and I could have sworn he said (in his precious 2 year old-like voice), "I'll be ok momma".  What a spiritual experience this journey is.  We are so blessed to have Aiden in our lives.    

Wednesday, October 31, 2012

Halloween

Halloween 2011
 
 
 
Aiden did terrific tonight Trick or Treating!  I kept following him up to the door in an attempt to help him, but he didn't need me!  He walked right up to the door and said, "Trick or Treat" when appropriate, and "thank you".  I held back tears.  It is moments like that when life feels normal, and autism isn't part of it.  The kids had so much fun, and that is always a joy to see.  I'm proud of my little pirates!     


Friday, October 19, 2012

Thoughts

 
My favorite fitness blogger just posted that a family member recently passed away from cancer, and it got me thinking about life--how short it truly is, what really matters from day to day, and how much I've been blessed.
 
I'll be honest.  I'm tired.  It takes everything I have most nights to workout instead of passing out on the couch, but I'm taking the time I need to take care of myself.  After I've been woken up by the baby 3-4 times at night, it takes a lot for me to get out of bed every morning to get Aiden off to school on time.  I haven't had a good night's sleep in 8 months or so.  It is hard to be patient with the "trying 2's and 3's," which Austin is not-so pleasantly inbetween at the moment.  And it is taking a lot of prayer and attempts at patience to potty train 2 children at the same time.  But, I'm happy.  We have everything we need, Aiden is making great gains despite his diagnosis, we are healthy, and I wouldn't give it up for the world.  My heart breaks for all those that have to leave their families prematurely.  I pray our Heavenly Father keeps me alive and well for a long time so I can watch my children grow and be an active part in their lives.  I keep trying to find ways to help provide for our family financially, but the fact is, I don't want to miss these moments, because you just can't get them back.  Lord willing, there will be plenty of time to establish my career when my kids don't need as much guidance.  The kids are growing so quickly, and as I look back, I'm grateful that I was with them every step of the way.  We've had so many fun moments together.  I love watching them have fun and get excited.  My children helped me overcome a dark, long depression.  They give me purpose and joy.  After reading her post, I kissed each one good night again while they slept.  I'm so grateful I'm here for them.  I want to be here--on this earth--to watch Aiden overcome autism, because I know he will :) 

 
 


Wednesday, October 17, 2012

Food

Aiden's nutrient intake continues to be a constant struggle...

I continue to presume that Aiden has sensory issues related to food.  I made chili the other day--a food Aiden WILL NOT eat--but I put cheese on top so he would at least try it.  He did try it, but got some bean in his month, gagged, and threw up everywhere.  That wasn't the first time that happened, so I knew he wasn't sick.  Aiden still won't eat a single fresh fruit or vegetable.  I made pumpkin "muffins" with chocolate cake mix for breakfast this morning, and he ate 1/2 of it.  That was better than I expected.  It was the only source of vitamin A he consumed that wasn't synthetic, besides the sweet potato mixture in his juice boxes, and sweet potato chips.

So what DOES Aiden eat?  I'm a big fan of "clean" eating/whole foods with limited ingredients and minimal processing, but I have to focus on nutrients for Aiden, not just quality foods.  So here it is; this is what Aiden will eat/drink:

*100% juice (he actually prefers it over the juice flavored sugar thank goodness).  I buy a 100% juice blend with vegetable and fruit juices.  Whole foods are best, but Aiden won't eat them.  He gets plenty of fiber elsewhere.

*Bread.  Although I do not give him a lot, Aiden will eat 100% whole wheat bread.  The only combined food he will eat is an occasional PB&J sandwich. It was a shock when he ate it, but sometimes he will.  I use natural peanut butter and 100% fruit jelly.  

*Cashews.  He doesn't eat the spicy pumpkin seeds like he used to, but thankfully, he will still eat some nuts for healthy fat and protein.

*100% fruit snacks.  These really aren't very healthy, but they are a source of vitamin C and natural sugar from fruit.  

*Sweet potato chips.  Thank goodness for these salty things!  They are basically baked sweet potatoes with salt, and Aiden will eat them!  Whatever works to get him to eat a veggie!

*Beef jerky and bacon.  These are the only meats Aiden will eat.  I try not to give him too much, because processed meats are linked to cancer, but what isn't linked to cancer these days?!  I'm assuming he eats these because they are very salty.

*Milk.  I put a tablespoon of Ovaltine in it twice a day for his "multivitamin".  He will only drink it if it is flavored.  Milk remains the majority of Aiden's protein intake--unfortunately.  At least it gives him some B12 too, since he is mainly a vegetarian.  

*Cheese and yogurt sticks.  Aiden's favorite cheese is Parmesan, and he enjoys frozen yogurt sticks.  I'm grateful I don't need to try to afford probiotics.  He gets plenty from yogurt :)

*Crackers.  Almost any kind.  I rarely give them to him.  He gets plenty at church.  Sometimes I put peanut butter between 2 graham crackers, and he will eat that every so often.  At least they are fortified with B vitamins! 

*Cereal.  Aiden loves cereal.  I try my best to give him those with <10 grams of sugar per serving.  So far, Kix is the lowest in sugar that I've found, and he likes it.  Even better that it doesn't contain food coloring like some others.  It is also a "multivitamin" for him, which he needs.  

*Aiden will eat just about any treat that doesn't have a weird texture.  I limit them to special occasions away from home.  I give him dark chocolate at home a few times a month.

That is it I think.  I hope he adds to this list some day!!!

 

 

   

Tuesday, October 16, 2012

Words!

Aiden is starting to communicate!

I nearly cried the other day when Aiden approached me and asked, "momma, blow up ball please (handing me the ball)."  I was so excited!  That was the first time Aiden asked me to do something for him.  He has a ton of words now, and he is finally learning to put them together.  He also responds better to questions.  Me: "did you have fun at school?"  Aiden: "fun, yah!"  Although a lot of his responses use the word I did (echolalia), I'm still excited to get something out of him.  Previously, it was a blank stare, and complete lack of acknowledgment that I said anything at all.  I often wonder what would happen if we could afford speech therapy.  I wish we could at least have that while we wait for services through WEAP.  We are blessed that he is making such great progress with Early Childhood alone.  Ok, love and prayers have a lot to do with it too!  :)

As for potty training, I'm struggling with patience.  Aiden finally went #2 on the potty at school when the teacher caught him "looking like he needed to".  Great work teacher, but Aiden still doesn't understand that he isn't supposed to go in his diaper.  He understands what you want from him on the potty, and he will go if you catch him at the right moment; otherwise, he just doesn't connect the 2--always go in toilet, not in diaper.  I put him in underwear for the first time yesterday, and it didn't seem to bother him when he was wet :(  Bummer, I really thought that would work.  So, now I'm trying stickers and dark chocolate.  I don't believe in using food as a reward, but I don't know what else to do.  I need you WEAP!  Aiden will be 5 in January, and it is feels strange to change his diaper.  I really hope it "just clicks" by Christmas!

Tuesday, September 18, 2012

Patience

 
Our Heavenly Father is teaching me patience yet again...
 
 
Aiden remains on the Waiver Program wait list for intensive therapy (ABA behavior therapy for autism).  I received a phone call yesterday saying he will be off the wait list in April of 2013.  We discussed my concerns, and the good news is that we may have the option of going down to 10 hours a week, should it be too much for him with school.  If all goes well, he will receive intensive therapy from April-August, then when he starts Kindergarden we can decrease his hours.  That is the plan, but life has a way of changing it!  Who knows?  Aiden could blossom by then!!!  He has already made so much progress with time and school.  I'm sincerely grateful.  He is a terrific listener, and a GREAT kid!  I have no doubt Aiden has a unique gift that will bless many lives.  He is already MY shining star.  

Friday, September 7, 2012

Fall '12

 
Another summer has come and gone.  We did so much this year.  The boys and I went to the Rock County Fair thanks to the help of our neighbors, and we went to Corn Feast with Abe's family.  We had a variety of playdates with friends from Mom's Club and church.  We swam a little, visited the zoo several times, ate way too much icecream, did our annual apple orchard trip, went to the library and the mall play area.  Despite limited income, I felt like we didn't miss out at all.  We are very blessed.  Although exhausted from late night/early morning feedings, I've enjoyed watching Ashton grow rapidly and start to coo, giggle/laugh, and grab at toys.  The boys love him too :) 
 
The above picture is the first day of school for Aiden.  This is his final year in Early Childhood.  The teacher was so excited that he is talking so much more!  I've noticed a difference too in just a few short weeks :)  He is starting to try to form sentences, but only some words make any sense.  I'm so excited though!  He is also making slow progress with potty training.  He is starting to go potty on the toilet quite frequently, but he still doesn't tell me when he has to go.  He will get there.  I'm praying this will be a year of speech and underwear! 
 
This is also Abe's final year in graduate school.  Words can't say what a relief it will be when he is done--for all of us.  Each year we make less money, and each year we have another child!  Let's just  say times are tough for many people right now, and we are no exception.  I wouldn't take it back though.  I've never appreciated food, clothing, and shelter as much I do today.  I've learned many lessons in humility, sacrifice, patience, gratitude and faith.  I'm especially grateful for my husband who works so hard for our family.  The Lord has provided everything we need because we are doing His will.  I'm proud to call ourselves Latter Day Saints!  I wouldn't have my 4 greatest blessings without the gospel of Jesus Christ.     


Wednesday, August 15, 2012

Ashton

Ashton is now 3 months old!


Every time we go in to see the doctor, autism finds its way into the conversation.  At Ashton's 3 month appointment, our doctor asked if we noticed anything when Aiden was a baby.  Looking back at Aiden's 1 year video, I would say yes--now that we know what to look for.  He was socially less interactive than other children at 1.  However, I remember Aiden sitting up at 5 months, crawling at 7 months, and walking at 1 year.  I remember his first words were "ball" and "dad"  around 9 months.  He waved bye and pointed at 1 year.  Those are all appropriate milestones, and Aiden met them all.  It really wasn't until 18 months that we noticed a speech delay, and the rest is history.  So, we wait.  Ashton does do some things just like Aiden did when he was a baby (startles when you put him in water, and he was cross-eyed at birth).  They may have no connection whatsoever, but it worries me a little. 

Abe continues to talk about having "our girl".  It frustrates me, and makes me a little sad.  If Ashton is indeed autistic, our family is complete.  I really don't believe we would have a girl, and I'm really uncertain about having anymore children regardless of Ashton's fate.  I love my boys, and I want to give them all that I can.   




Monday, July 30, 2012

Overwelmed


This was a post I did in my personal blog, but I felt it was appropriate here as well.



My heart is broken in many ways...



I find myself overwelmed with autism information and theories once again, and it is hard to overcome the heart break.  I left Facebook for awhile to avoid all the negative talk about diet and our food supply.  Mentally, I just can't handle it anymore.  I'm sad that something I enjoyed needs to be taken away.  I miss talking about my kids, and posting pictures.  I hope the distraction passes with time.  I've noticed that when I want to go on FB, I do something more productive instead--like play with my children!  I pray I'm doing what is best for my kids, and that my time with them is spent well.  I truly believe that God gives us what we need to grow, and what we can handle.  I just wish I could feel 100% sure that I'm doing what is right for Aiden.  I second guess myself more and more each day.  I pray our Heavenly Father can give me peace in that regard, and that Aiden is one of those children that overcomes autism with love and therapy.  I'm so grateful for his progress!

Honestly, I'm really looking forward to the new school year.  I hope we can find a healthy routine that works for all of us.  It is so important that I get my workouts in, but working out at night is not ideal.  I got it done early yesterday, but the kids were in and out, which distracted me.  I wish I could find an hour or 2 for just me each day.  I will miss that next school year very much!  I need that time.  Praying we all find balance and happiness again...life is just too short to live it any other way!

Tuesday, July 17, 2012

4 1/2

Aiden will be 4 1/2 on Saturday!



Speech--Aiden asks for things appropriately now; "Little help please momma," "more cereal please."  He also says appropriate sentences like, "good morning" and "good night momma," or "bye dad".  When I put things away he says, "all done," and the name of the item I'm putting away.  Aiden still knows all his animals and colors, and he can spell his name when prompted with letters.  His vocabulary continues to grow.  However, when asked a question he will not respond. 

Potty training--EC has been working with Aiden since he was 3.  He finally started to feel comfortable sitting on the potty the beginning of this year, but never actually went.  Yesterday he peed in the potty for the first time!  He continues to sit on the potty, use toilet paper, and flush, but I'm not sure he actually understands what we want him to do.  Austin has been peeing on the potty very well, so I'm hoping that will give Aiden the push he needs.

Interaction-- Aiden and Austin play well together most of the time.  Austin likes to lead the way, and Aiden follows :)  As far as playing or communicating with other children, that still needs work.  I've never seen him trully interact/have a "conversation" with anyone but his brother.  He continues to hide in the garage during outdoor playdates most of the time.  I'm grateful for Austin.

Sensory--Aiden seems to continue to have sensory issues related to foods.  We eat a fresh fruit or vegetable at most meals, but Aiden won't touch it.  He knows the name of the food, but he won't eat it.  The only other sensory concerns I have are the moments when Aiden hits his head.  I hate that.  It bothers me because it screams "something isn't right".  I don't like to be reminded of that daily. 

Diet--I could put this under sensory, but it is so important to me that I'm seperating the 2 catergories.  I'm doing the best I can.  I try to limit his sugar intake, and provide the essential nutrients he needs to grow.  I try to include a source of vitamin A and C each day because he won't eat fruits and vegetables.  I discovered a new food that Aiden will eat--bacon!  We use to rarely eat bacon because it isn't a healthy fat, but it gives Aiden some protein and calories, and that is all I care about. 

Protein/iron/zinc/fat/magnesium/vitamin E--beef jerky, nuts/seeds, beans (he only eats baked, but rarely).  He rarely eats peanut butter (he did eat some of the peanut butter/chocolate/chickpea things I made).  He won't take an Omega 3 gummy supplement. 

Vitamin A--Fruit and veggie juice, sweet potato chips, rarely a homemade pumpkin pancake or muffin.

Vitamin C--Unfortunately, juice is his main source, but he also gets some from fortified cereal and 100% fruit snacks.

Calcium/vitamin D/protein/phosphorus--milk is his primary source of calcium and vitamin D, and it provides the majority of his protein for the day.  I give him 2-8 oz cups a day.  He doesn't need more than that.  He will also eat some yogurt.  I freeze organic yogurt sticks, and he will eat a whole one of those.  I will note here that Aiden STILL doesn't have any digestive issues.  No excessive gas, diarrhea, or apparent discomfort.  I would like to add a liquid probiotic anyways. 

B vitamins/folate-- come mainly from fortified cereal, which he eats every morning (GF Chex varieties and/or Kix without food coloring--too much sugar, but I gave in).  They occasionally come from whole grain bread as well, but rarely.  I don't give him crackers.  He gets enough of those at school and church.  That is where the majority of his gluten comes from.  I still haven't gone completely gluten free, because Aiden continues to sneak foods from people and our pet.  I will note here that I don't think it will make a difference for Aiden, but I would like to test it for at least 6 weeks.  Anything longer than that, and it would be hard to differentiate between Aiden's own progress vs. any progress made with the diet itself.  I don't know what changes I should expect from him.  Fifty percent of caregivers say the diet works, but they never state what behaviors it helped with!  Dietary changes help with digestive symptoms when food allergies/intolerances co-exist with autism, which is not uncommon.

Gut bacteria help produce biotin, and vitamin K...another reason I want to add a pro or pre-biotic.  Aiden gets most of his minerals from fortified cereal and nuts/seeds.   
Aiden gets plenty of fiber from popcorn and nuts/seeds.  His diet does lack significant potassium due to his low fruit and veggie intake.  He occasionally eats bites of the banana pancakes I make with buckwheat.  I give Aiden a multi-vitamin occasionally, but his cereal every AM is fortified with the majority of the nutrients he is lacking.  I don't believe supplements are a "cure all," so I don't waste my money on them.  Aiden is getting plenty of calories, fat, and protein in his diet.  He is growing well, and his skin is clear as a bell.  He is rarely sick.  If nothing else, I hope 5 years of education on nutrition is doing something to benefit my children! 

Wednesday, July 11, 2012

Marriage

Couples with special needs children have a 80% divorce rate...

Although I'm not a big fan of stats, they do have some merit.  I understand this one.  From what I've read from other parents of autistic children, 1 person usually does all the work, all the research, and all the worrying.  That person is me.  I feel pretty alone in all of this.  Abe is in his graduate program, and his focus is on that and only that.  One of his classes is on special education.  When doing the unit on autism, Abe came to me with all this knowledge that I already cried, stressed, and worried over...a long time ago.  We don't talk much about Aiden, or anything else for that matter these days.  

Honestly though, I don't think that is what is driving us apart.  I love being Aiden's biggest advocate.  I am willing to learn all that I can to help him.  I go to all the meetings I can, and read all the information that is available.  Abe gives Aiden a lot of love, and I appreciate that so much.  He needs his daddy and just as importantly, a stable, healthy environment.  My parent's divorce made me realize just how important it is for a child to have both parents in the home.  That knowledge alone will make me fight for our marriage!

I know I need to change my attitude, be more positive and encouraging, and make more of an effort.  I wish I could get there.  The only thing that would work to change my heart is to pray.  I do want to change, but it takes work that I just don't have energy for--especially when baby #3 comes along.  I'm very nervous that the transition will be rough for all of us.  

July 11th update: The above was written months ago, and I'm happy to report that Abe and I are doing very well.  I've decided to focus on the wonderful things about Abraham--not the things that frustrate me.  He has been very supportive and loving despite my anger and resentment over the past 3 years.  He is a terrific father.  He works hard, and wants to finacially support his family.  He values marriage and our commitment to our children and God.  That is what is important, and I'm happy to report that my change of heart has strengthened our marriage and commitment to one another!   

ABA therapy

July 11, 2012


Exactly a year ago today I posted on our experience at Mercy Options--our last hope at the time for intensive therapy.  I remember it very well, because July 11th is my birthday.  We were told by a physician, and Mercy Options staff that our insurance was now accepted for autism services.  Ironically, our appointment was exactly the same day a year later.  I thought this year my birthday "present" would be the gift of therapy for Aiden.  Unfortunatly, I was very wrong.  When we arrived today, they didn't have us on the schedule.  I cried softly and told them that we had already waited a year.  "We already know he is autistic.  I just want him to start therapy" I said.  The receptionist called someone to come talk to us.  AGAIN, I told her our story and what insurance we had.  I filled out the paper work AGAIN, and waited to see the doctor (it was our "lucky" day because she had a cancelation). 

Aiden and I entered a cozy little room full of toys to play with.  Immediately the doctor told us that our insurance was NOT accepted, and we would have to wait the final year for the Waiver Program.  "It is very discouraging for parents and therapists" she said.  She offered to give Aiden a "creative diagnosis" so he could receive therapy once a week at the office.  You want me to label my son again?  I thought.  "With what diagnosis?" I asked.  "Stress, anxiety, behavior concerns..." she said.  No thank you.  And what are you going to do?  Sit on your couch and talk to him about his "problem"?  I thought.  He needs intensive therapy!  Instead, I voiced that children were falling through the cracks even though ALL THE RESEARCH says early therapy is key--especially before 5!  "30-35 hours a week proves effective" she said (nice job active listening lady.  I learned that in school too).  I expressed my concern that Aiden may never get therapy, because he will be in school full-time by the time we are off the waiting list.  That would mean 20-30 hours of additional therapy/week.  I don't think that is healthy for any of us.  We would never be able to leave the house.  Yet, programs will not accept you if you don't do at least 20 hours/week.  No more weekends away, no more walks at night, no more playdates.  We would have to be home for therapy.  That makes sense to me if Aiden was sitting in a corner all day rocking his time away, but not when his needs require just a little extra to help him overcome his "moments of strangeness". 

"What concerns do you have with Aiden?" she asked.  I started to describe Aiden's "moments," but I couldn't continue.  I just cried.  I was re-living the nightmare I already lived a year ago, and my heart couldn't take it anymore.  I thanked her for her time, and walked out of the room. 

I will keep Aiden on the waiting list, but my greatest hope is that he overcomes his challenges before that time.  Heavenly Father knows best, and maybe Aiden doesn't even need what these programs have to offer.  That leaves me waiting and praying for Aiden to continue to progress on his own.  It is strange changing his diaper.  He seems too old for that.  New toys facinate Aiden, and he obsesses over them.  If one is lost, it is a nightmare for us.  Children his age try to talk to him, but he doesn't respond.  He slaps his head and falls to the ground at random.  I can write them down now, but somehow I just couldn't tell the therapists these concerns.  I don't want them to be made light.  Everyone says "Aiden will be just fine".  I don't believe that means I should sit around and do nothing for him.  It hurts that I can't help him.  It hurts worse that the "theories" surrounding autism point the finger at me.  Aiden got a ton of antibiotics when he was a baby, and I gave him his shots, so it is all my fault.  It is mentally killing me to read about it.  Destroying my very spirit so much, that I get down on my knees and pray for guidance and peace.  I have decisions to make for Ashton now.  I question my every move medically and nutritionally with him.  I have little faith in my own eduction or in science/the medical field anymore.  Why do alternative therapies vary so much from traditional ones sometimes?  Some people have very strong opinions one way or another, but I'm just confused, upset, and frustrated.  I want this chapter to be over, but I may have to relive it with Ashton.  I keep praying to Heavenly Father to help me.  To bless Ashton to be healthy and strong.  There is promising research that some children with a family history of autism somehow "rewire" their brains to fight it.  Please.  Please.  Please "rewire" Ashton's brain Heavenly Father.  I don't think I'm strong enough to live this again.    

Saturday, July 7, 2012

Sacrifice

I stopped by work today and it made me think a lot about sacrifice.


Abe and I have made many tough decisions the past 6 years.  The first one was joining the military (time away from family), then quitting my full-time position to become a full-time mother (losing the majority of our income), and deciding from the start to always pay our tithing (our income has been less than our debts for 1/2 our marriage).  Abe and I haven't bought clothing for ourselves aside from a small handfull of items from Goodwill.  We go on dates 1-2 times a year.  We forgo trips to save gas money.  We use government assistance programs despite a strong desire to be self-reliant.  All these things have taught me humility, patience, and a gratitude that could only come from such trials of faith.  I appreciate having a home and food on the table more than I ever have.  I see the Lord's hand in my life each time a friend gives us clothes or diapers for our children, and our meager income stretchs farther than worldly possible.  I can honestly say I'm grateful that we struggle.  Miracles have happened, and I have some great stories of faith, and enduring to the end to tell my children. 


A salesman came to our door the other day.  He was selling Bible and Book of Mormon CD's for children.  Although we simply couldn't afford them, it made me think--what am I doing to help my children learn faith now?  We say our prayers at meals and bedtime, but I'd love to teach them the scriptures.  I would love to learn them better myself!  I showed Aiden and Austin a picture, and both of them identified "Jesus".  Thank goodness.  With all that we do each day, sometimes I think I forget the most important things.  I want my children to learn what it is to have faith.  I have a testimony that God lives and that he loves His children.  I pray that my children know that too.    

Tuesday, June 26, 2012

SO UPSET

I cried harder and longer than I have in a long time on Sunday.

A woman came into my life recently who claims her son no longer has autism.  She has her own website in which she promotes the body ecology diet, and warns of the "dangers" in our food supply.  I WILL NOT post a link to her site!  Some of the information was accurate--I've read it in my professional publications--but other information lacked science.  She claims that genetically modified food and our water supply is making us sick.   I've read on GMOs (genetically modified organisms) and their pros and cons.  I avoid them, but I DON'T think they are the cause of diabetes, cancer, etc.  I also don't think our water supply is contamined with drugs.  Seriously?  What CAN we eat and drink these days?  I'm beyond tired of all this bad food vs. good food information.  I could throw a toddler like tantrum I'm so sick of it.  In fact, I cried like a baby on Sunday as I read--yet again--the theories surrounding autism.  I thought I was past all this and moving on, but I find myself second guessing myself yet again. 

The THEORY (again): yeast infections in the mother are passed onto the baby.  The infection then crosses the babies blood-brain barrier, and weakens his/her immune system.  Therefore, when he/she is given the MMR shot they can't fight against the diseases they are designed to prevent.  Again, the Wakefield paper was sited (this paper was resinded by his peers). 

Why isn't Austin autistic then?  I had yeast infections with him as well, and he had the MMR shot.  Aiden DOES NOT have any of the GI issues sited on her website and never has.  He did have chronic ear infections and many antibiotic treatments though, which DOES affect gut bacteria and affect the immune system--that is a fact.  Yet, I know another child who had SEVERE ear infections and still did until he got tubes at age 3 (they were so bad his hearing was affected).  He had his shots, and he is NOT autistic.  What is going on?  Jenny McCarthy--ok not a good source of information--also believes this is why her son is autistic (she also claims he isn't anymore).  She states in her book that her belief is some children's immune systems can't handle the vaccinations, so they become autistic.  Coming from a lady who feeds her son corn chips because they are gluten free (corn is usually a genetically modified organism by the way).  She also believes in the yeast theory, and that diet changed her son's behavior.  Fact: sugar feeds yeast.  Fact: It is HARD to keep a 4 year old away from it when everyone else gives him juice, candy, cookies, etc. etc. every chance they can.  Avoid dairy?  Dairy is Aiden's only source of protein on a daily basis (he will occasionally eat nuts and seeds as well as beef jerky, but not always).  And gluten?  Aiden eats dog food (caught him under the kitchen table) and soap (when he thinks I'm looking away), and will take food from other people when they aren't looking (I've witnessed it)...good luck keeping him away from it!  I can't live my life like that.  I just can't.  I have 2 other children to look after, and the idea of changing Aiden's already limited diet makes me feel ill.  I have visions of going to jail for malnourishing my child.  The body ecology diet recommends all these foods that Aiden just will not eat (he still won't touch a fresh fruit or vegetable), but of course--I can PURCHASE products from their site to supplement his diet.  NICE.  Try to sell me another product or supplement that will "cure" my son of autism!  That is like saying a diet pill will make me skinny.  Right. 

So what is next?  I TRY hard to move on again.  I pray with all my heart that the answers come for AIDEN and that I do what is right for HIM.  Children have and do overcome autism without dietary interventions.  I pray that Aiden is one of them.  If not, I will love my child regardless, and not live my life trying to change him.  I still believe there are great lessons to be learned from special needs children.  I love Aiden's personality, and I don't want it to change.  

Sunday, June 24, 2012

Enough?

Lately I've been thinking...am I doing enough?


It is 4 AM right now.  Ashton woke me up at 2, and I couldn't get back to sleep.  I'm grateful for this time to post my thoughts on parenting 3 young children. 


Our routine has changed a lot this summer, and it has been an adjustment for all of us.  I personally miss my 2 hours of "me time" when Aiden is in school, and Austin is sleeping (or playing alone in his room).  I realized how important it was for me to have that time now that I don't have it.  Every morning we would do an activity together--a playdate, a trip to the park, a walk, go to the library, or the play center at the mall.  Then it was lunch, school for Aiden, and rest time for Austin and I.  Later we would go to the park, watch a movie, and/or go for another walk.  I loved that.  It worked for all of us.  Now, our schedule is everywhere.  Aiden gets on a bus at 9:30 and is home by noon for lunch.  Austin, Ashton and I try to catch a playdate within those hours.  Aiden hasn't napped for over 2 years now, and Austin isn't taking them like he should (he falls asleep on his own pretty early sometimes).  That means I have to find something entertaining for us to do after lunch now.  Honestly, I'm exhausted by then (too many baby wake up calls), and all I want to do is sleep!  The kids watch more and more TV these days, and it bothers me A LOT.  Although we don't receive any channels, we do have a ton of movies, and the boys love to watch them.  What they watch is ok (with the exception of Shrek's iffy wording), but I know how important it is to get Aiden to interact.  I just don't have the energy for it in the early afternoon. 

Unfortunately, this schedule will not change much in the fall.  In fact, it will be harder next school year, because Aiden will be in school from 8:30-11:00, which means we have limited time to do anything in the morning, and the afternoons will still be free.  On a very positive note, it looks like Aiden will receive therapy a year EARLY.  I will know more on July 11th.  I'm praying that will give him what he needs when I just can't.  I keep thinking, I have to be doing alright, or the Lord wouldn't have prompted me to have Ashton.  I do believe that, but some days I feel guilty because I can't give Aiden as much attention as I used to, or I lose my patience because I'm so tired.  It breaks my heart a little, and I feel inadequate.  I'm trying, and I'm sure it will get easier as Ashton grows, and I get more sleep (he is only 6 weeks old).

Sadly, Austin seems to be picking up on Aiden's "unusual" behaviors.  At a recent playdate, Austin hit his head and fell to the ground (Aiden does this a lot).  I also noticed that he is starting to line things up just like his brother.  I get it, but it isn't easy to watch.  On a positive, Aiden is very strong from all his climbing, jumping and running.  Austin has picked up on that too, and they climb even the highest of places together (with the exception of the first tree Aiden ever climbed).  Austin seems too small to be climbing so well, but he does it, and I'm glad they are both active and strong! 

Aiden continues to be a loving, sweet brother.  He continues to ask if he can "hold the baby".  He gives Ashton his blanket and pacifier, and pats him on the head.  Aiden and I had a rare moment alone together last night, and as I tucked him in he said, "thank you momma".  Man I love that special little boy!  I sincerely hope he overcomes all this, but if not, I will love him for the man God intended him to be.   




Wednesday, June 6, 2012

EC

Aiden has 1 more year of Early Childhood before he starts Kindergarden!  Tomorrow marks the end of another "semester".


I continue to be tremendously grateful for the Early Childhood Program!  I don't think Aiden would have made the progress he has without it.  Thank goodness for good teachers who are patient and loving to our special needs children!  I want to highlight here some of the changes I've seen in Aiden since he started the program.  I hope he maintains them over the summer!

Potty Training--Aiden used to be afraid to even sit on the potty.  Now, he sits on the potty and flushes it when he gets off.  He still hasn't actually gone on the potty, but we aren't sure if he even understands what we want him to do.  It is a good start, and I'm grateful to see progress.  I have been trying to be consistent with getting him on the potty for every diaper change, regardless if he does anything or not.  I really hope it will "click" for him before the end of the year.  Meanwhile, we still receive diaper assistance for Aiden because he is on disability.  (Thank goodness, because we now have 3 in diapers.)

Interaction with peers--I continue to be grateful for Austin and his relationship with Aiden.  He helps Aiden so much!  Austin teaches Aiden how to play :)  We did a playdate at our house today, and I'm happy to report Aiden played with the other children!  In the past, Aiden would hide in my bedroom during playdates, or stay inside when we went out in the backyard.  He played the whole time today, and it has been that way the past few months as well.  Recently, he GREETS his classmates by the correct NAME when he arrives at school.  He says, "hi" and "bye" at appropriate times at home as well.  That is an incredible accomplishment!  His teacher has been working on greetings for a long time!  He finally "caught on" during spring semester. 

Communication--It brings me great joy to say that Aiden is talking!  His words are growing by the minute!  He asks for more food, movies, etc. appropriately now (although the sentence might not be complete).  He has more eye contact, and he answers some questions such as, what color is that Aiden?  He still doesn't understand complex questions like, "how was your day Aiden?" or "what did you do today?"  I don't care.  Aiden is TALKING, and I know more words will come with time. 

The best part?  When I say, "I love you Aiden."  Aiden replies--not repeats, "I love you TOO." 

Next year will bring more change for all of us.  Aiden will do morning EC instead of afternoon.  I'm sad about that.  Every morning the boys and I go to a playdate, the mall play center, the library, or for a walk to a nearby park.  I will miss that, and I think Aiden needs that.  Afternoons are "rest time" for Austin and Ashton, which I need and look forward to while Aiden is in school.  Mommies need to "recharge" too!  I'm hoping we find a healthy new schedule for all of us.  We will see what happens next week when Aiden starts early morning summer school!

                                              Playdate (Aiden is on the far right bottom)!



Tuesday, May 22, 2012

Big Brother

Ashton William was born May 12, 2012 and Aiden is his biggest fan!



Thankfully, having a new baby hasn't affected Aiden at all.  In fact, Aiden loves to hold, kiss, and hug Ashton.  He points to his umbilical cord and says, "owie".  So far it has been an easy adjustment for all of us--like it was meant to be :)  

The doctor says Ashton is developmentally appropriate and progressing well, but she also commented, "that is what I said about Aiden too".  I almost cried in her office.  That is what we are afraid of.  Ashton is a little cross-eyed like Aiden was for the first few months, and immediately, I started to think we would have this journey all over again.  The doctors say there is no connection between the two.  I sincerely hope not.  Only time will tell.  That said, I STILL wouldn't change Aiden for the world.  He is such a special little boy.  In fact, he is the calm within the storm of the "trying twos," which is how I describe Austin's behavior! 

I'm grateful for my children.  They are my greatest accomplishment and joy.  All I do, I do for them. 

  


Tuesday, May 1, 2012

Progress

Aiden continues to be a sweet, loving boy who brings us joy every day!

I'm very happy to write that Aiden is making great progress!  He is starting to respond to conversations appropriately, and almost always follows directions.  I sneezed today and Aiden said, "bless you".  He says "good morning momma" and "bye dad" now at appropriate times.  But best of all, Aiden says, "I love you too" when I tell him how much I love him.  He still doesn't respond when I ask him how his day was at school, but I'm certain that will come!  From his teacher's notes, and his IEP meeting, Aiden is doing very well in school.  I see the changes in him, and I'm grateful he has some sort of education while we wait for intensive therapy.  I'm starting to think he won't need it!  

Aiden will be 4 1/2 in July.  He is still not potty trained.  He is willing to sit on the potty at times, but he still hasn't actually gone on the potty.  Lately, Abe and I find him in his room--or ours--with his pants down and diaper off.  I'm not sure what that means.  I really want to start him on a toilet training routine at home like they do at school; however, there are a couple barriers to that: 1) he will start summer school in a month, and his day will change completely, and 2) we are going to have another baby REAL soon, so my energy and our routine will be altered significantly.  I'm really praying that I can get Aiden started on a potty training routine by the end of the summer.  That gives us a couple months to adjust to baby #3 and start over with a new routine for all of us!

Monday, April 2, 2012

Labels and Stats

Baby boy number 3 is almost here, and I find myself thinking...what if?

I've read some research that says the baby has a 5% chance of be diagnosed with autism (2 articles); but recently, I read 15% (Abe's school textbook that is 1 year old), and an article a few months ago that said 27%.  All of the info states that autism is more common in boys--up to 4X higher.  I wish I would stop reading.  I'm tired of the inconsistencies and theories!  There is definitely a genetic link, but an environmental one is also possible.  Many people blame vaccinations (all the research says there is no link) and chemicals in our environment (certain drugs do increase the risk if consumed while pregnant) for the rise in autism.  But some, believe it is new diagnostic criteria (the DSM guidelines for diagnosis are going to change again in 2013), more awareness due to the media, and a shift from a diagnosis of "mentally disabled" to "autism".  A friend who works as a therapist for WEAP and I discussed the labeling of such children.  Some of the children she works with she has questioned their diagnosis.  My OB/GYN also warned me about excessive labeling.  I agree.  There is such a wide "spectrum" of skills among this population.  The general manifestations are the same, yet so different.  I try hard not to get caught up in all this, but having another child with special needs frightens me a little.  I don't feel adequate NOW.  I can't imagine having 2 children who need extra help.  I hope if this does happen again, I will turn to the Lord, trust that he knows me better than I know myself, and plead for his help and guidance.  

On a positive note, Aiden is doing very well.  He is responding more and more to my words, and is starting to say "I love you" spontaneously as well as "I love you too" when I say it (which is often).  Those are the moments I cherish.  Aiden still has a hard time when he is missing an object he is set on playing with, but that is the only thing that really challenges my patience.  I continue to be very grateful for Austin.  He plays very well with Aiden, and is such a great example for him.  Ok, they fight a lot too, but Aiden needs to learn how to interact with others in all aspects of daily life.  Potty training is going better at school, but I'm having a hard time approaching it at home.  Aiden says, "no potty" when I ask him to sit on the toilet.  I don't want to force him to do anything.  Plus, I'm worried I'll get somewhere with it, and everything will be out the window when the baby comes!  I really hope both boys are potty trained by the end of this year.  I'm grateful for Aiden.  I wouldn't change him for the world.  He is such a sweet, loving boy!  I am eternally grateful for his progress!

Thursday, March 8, 2012

1 year

It has been nearly a year since Aiden's diagnosis...

I've learned so much about autism, myself, and "the big picture" this year.  I don't think I can accurately write how much Aiden's diagnosis has changed me as a mother, a friend, and professional.  Most of the time I feel grateful.  Some days I wish I never had to see, hear, or read another thing about autism.  I've learned to keep an open mind, to question "research", and find my way spiritually.  I continue to struggle with all the unknowns, and I pray that someday I will truly be at peace with them.  One thing is for sure, I have a lot more questions now than I ever did for our Heavenly Father.  Gratefully, the question of why this has affected Aiden and our family has already been answered.  Aiden is our blessed gift.  Heavenly Father trusts me with him, and that is what keeps me going, no matter how inadequate I feel as a mother.  


27 weeks pregnant, Aiden-4, Austin-2

Ironically, I was always the one who befriended the "underdog" in school.  I went to prom with a special needs young man, and I had the time of my life--serious.  Later, I worked with a special needs young woman in my first job as a Dietitian.  We became good friends.  I still wonder what ever came of those great people I was blessed to cross paths with.  My deepest hope is that Aiden makes good friends--friends who accept him, and are patient with his challenges.  I can't protect him all his life.  He needs to find his way on his own.  I hope he meets some inspiring people along the way!

I'm excited to see what the coming year has to bring for Aiden.  How our lives will change with a new addition to the family, and what path the good Lord will take us in after Abe finishes school next Spring.    So many more changes coming our way...

Monday, March 5, 2012

A-moments

Call them Aiden moments or autism moments, but they are rough...

When Aiden wants something, he wants it BAD.  Normally, I can read Aiden like a book and help him find what he is looking for, even when he can't verbalize what it is.  However, yesterday morning he wanted "bears," and I had no clue what he was talking about.  He has teddy bears, but he prefers his elephants, so I really was at a loss.  Aiden became very upset when I couldn't find what he wanted.  So upset, I had to shut myself in my room to handle the crying.  Aiden pounded on the door for a few moments, then finally, in a low, sweet whimper, Aiden said a rare sentence.  "Momma.  Open the door."  Of course I did, and Aiden gave me the best hug ever.  We sat there on the floor hugging each other for a long while.  

Something must have thrown him off again, because the same day, about 3 hours later, he was upset about something that "wound up".  He wanted to stay outside and refused to get in the van.  He cried for over an hour, and just wanted to be held when we got inside the house.  

These moments are very rare, but when they do happen, it is rough.  These are the moments I really wish I could put myself in his shoes, or better yet, that Aiden would finally find his voice.